WP4
DC14

Epistemic inclusion in cancer research: building a knowledge coalition
Objectives: Harvesting results of previous projects; Building a knowledge coalition to develop a holistic, inclusive approach to metastatic disease that incorporates the priorities, knowledge, and experience of researchers, patients, caretakers, RRI and SSH experts to make research more responsive to values and priorities of end users and develop realistic scenarios (responsible expectation management); contribution to methodology development in participatory research.
Expected Results: Our aspiration to involve knowledge, priorities and values of end-users in metastasis research aims to strengthen the positive societal impact of knowledge development and contributes to a broader movement of efforts to a more interactive, holistic and inclusive approach to research (ELSA, RRI, PPI). Our work contributes to bridging the gap between lab and lifeworld and develop a holistic inclusive approach via mutual learning exercises (epistemic inclusion), facilitating and empowering interaction between research consortium and future users (patients, patient organizations, physicians, nurses, clinicians, family members, journalists), fostering trust in science by making research more responsive to societal priorities. Contribute to methodology development for participatory research.


